After a tumultuous pregnancy, at best, and 5 weeks early the nurse placed this little person in my arms. My son. My surprise pregnancy. My nursing degree lol. But he was perfect and somehow mine. It took me a few hours to open my heart, but once I did I was done. William Carlysle came into our lives on November 8, 2009. He was born a late preterm at 35 weeks 2 days but was a good weight of 5 pounds 14 ounces. Had some congestion issues but no NICU at the time, just an extra day in the hospital.
An amazingly long road led us to his almost second birthday. Too much to inundate you with now. But this insane road has led us to his diagnosis, Angelman Syndrome. The exact extent of his syndrome is unknown as the diagnosis is almost two years in the making but only an hour old. He is the sweetest, happiest, lovingest, loved little boy and I am blessed to be the mother of an angel.
I hope you share our journey with us. I have no idea what to expect or what will happen, but I know my life will never be the same. It wasn't from the day they gave him to me.